Miliana, our little girl with all the horrible skin problems, has been diagnosed with Rothmund-Thomson syndrome. However, I personally believe she has something more than that. She has oozing sores, and some growths coming out that look like small “tree trunks,” similar to Treeman’s Disease. Perhaps this Rothmund-Thomson syndrome has more symptoms than I know about. I am wondering if any one of you has experienced any of these additional symptoms or experienced something similar. Miliana’s face is good, but the rest of her body, especially her arms and legs are covered with sores. We have kept her covered from the sun. I know she has a wonderful dermatologist who has good recommendations, but of course, we love her and are concerned. Thanks so much. Sherry